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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Lorna,
It sounds as if your Dad will be very comfortable at home with all you have arranged for him. Enjoy your day at work today. Thinking of you. Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Hi Lorna Just catching up and so pleased to hear that your Dad is making some improvement. It's wonderful that he is tolerating the meals you prepare for him and his pain has gone. Your daughter must be a lovely young lady, caring, compassionate and level-headed. You really have had your work cut work recently and hope you are managing to look after yourself too! It's so easy to forget our own needs when others are in crisis. Do take care Lorna. Thinking about you all, Lyn xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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How lovely to know your Dad has such a special relationship with Mhairi. She sounds a very caring young lady. Pleased to hear your Dad is managing to eat a little and is happier in himself. You take care, too, Lorna xxxxxxxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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I'm so sorry to hear the very sad news about your Dad Lorna. I do understand what you are going through as my Dad has recently had an op for bowel cancer.
I'm thinking of you and your family and sending lots of hugs.
Love Shirley x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hello Again, I came home early today, as I am so tired, my brother visited tonight with his family. I have also made up with mum, I really need her support and she will help in any way she can. I really need my brothers to make more effort as I am exhausted with all the running about I am doing, they have families but I do too. Plus my husband is absolutely choking with the cold. I think he picked it up during his 6 flights to and from Romania. He is sleeping at the far side of the house as I cannot afford to get the cold or germs to pass on to dad. I really hope dad keeps picking up each day, he goes up and down. When rested he looks really well all things considered. I'm off to collect my middle daughter from work as my husband is in bed ill. It never rains but it pours.  Lets hope things improve rapidly. Lots of love Lorna xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Lorna, You are a wonderful daughter, doing everything that is humanly possible for your dad, and encouraging such a positive outlook. You have every reason to be immensely proud of your daughter - but then she probably learned her caring ways from her mother! I really hope all this running about does not take its toll on your own health. When my dad spent two weeks in hospital last year all the constant visiting, and making sure everything was ready for him coming home was exhausting.I know we somehow find reserves of strength that we didn`t think we had, but do take care, and try to find some time for yourself. Thinking of you all, Kathleen C x
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Rank: Advanced Member  Groups: Registered
Joined: 12/8/2009 Posts: 230 Location: Leicester
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Hi Lorna,
Hope today has been a good day... Thinking of you. Stay strong
Gentle hugs for your Dad xx
Helly x Celebrating 10yrs of National Rheumatoid Arthritis Society Doing a Tandem Skydive - May 2011 - All Sponsorship Welcome - www.justgiving.com/helencopeland Read my blog - Helly Copeland
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hello Again,
Well I have been up most of the night as my dad was admitted to hospital again due to pain. It was such a worry, I have been there constantly and I had only left him at 8.15 and went home to have a glass or two of wine with my husband whom I have hardly seen in the past 2 weeks, between Ken being full of the cold and dad being so poorly. We had a nice short evening before I fell into my bed, I had only been sleeping a few hours when dad called, I felt so helpless as I could no longer drive or my husband for that matter. Dad is in sheltered housing so he contacted them, who sent an ambulance.
I was wide awake then and called a while later to find out what they were saying about him. The paramedics called me when they finished there check of dad. It was then they said they were admitting him to be on the safe side. I was to call an hour or so later to get feed back from the doctors. This was now around 4am, I spoke to the doctor then dad was admitted to the ward. I found I was unable to sleep for worrying about my dad. I must have fell asleep eventually but wakened to make sure my daughter was up for school. The hospital is re assessing dad's pain relief. This is a nightmare situation, I now and then think all is going to be ok and then I realise it is not. You really have to be strong for dad but inside you are crumbling at what is going to happen.
Lorna xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 88 Location: Aylesford, Kent
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(((((((Lorna)))))))))))) really really big hugs for you right now. I so know how your feeling right now. I am going through this with my dad who has been seriously ill since christmas and after two operations started chemo on friday. It has not gone well and has had an extreme reaction to the infusion and tablets. Am living on my nerves right now and sick with worry. I wish I was not wheelchair bound and disabled and could do more than just sit with him whilst having all the treatments. It frustrates me so very much. Just know if you ever want to vent and just let it out please feel free to message me. Sending you lots of love and strength to carry on. Love Belinda xxx Treat others how you wish to be treated!!
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Lorna,
really feel for you on hearing this news.
i hope you're Dad gets suitable pain relief that will help, and that you can rest when you can.
you have such a lot to cope with all i can do is send hugs and hope things improve for you all.
i am so sorry to hear you are going through the same Belinda,
take care both of you,
Suzanne x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Hi Lorna I am so sorry to hear about the further problems. Hopefully the hospital will now have sorted some suitable pain relief (for goodness sake, they should have sorted this before they discharged him!) and your Dad is starting to feel better. You are a wonderful lady Lorna and your Dad must be so proud of you for the care and attention you are giving him. Hang on in there, it is hard, but you will get there. I was up half the night in pain, we could have talked! If you ever fancy a chat do get in touch with NRAS for my details. Don't forget to look after yourself Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Lorna, I'm so sorry to hear how your Dad was in so much pain last night and i hope the hospital has sorted him out with better pain relief. I can well understand you not getting any sleep last night. Does your Dad have a McMillan nurse? Read up on this website http://www.macmillan.org.../TalkToUs/Talktous.aspx
These nurses are worth their weight in gold, they can give help and support to the whole family. There is a helpline number on the website where you can ring and speak to one of the nurses about all the problems you have looking after your Dad and they will give you good advice. Hope it's of use to you, it might just take some of the burden off your shoulders. Have a good sleep tonight. Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Hello Lorna
Just sending you a big ((((((((((HUG))))))))))
Hope that things are better for you and your dad today.
Take Care
Love Paula xx
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi All, Dad does have a MacMillan Nurse and a palliative care scheme with district nurses, doctors, and an on call pharmacist at his fingertips should they be needed. They come in from time to time, he told them he doesn't need additional help because I am there, but it really is an incredible amount of running around and it is a 40 mile round trip when I see dad. He was discharged from the hospital on a good source of pain relief but the morphine dose was making him sick and he had to stop taking it. He is to be given a link to the MacMillan nurse to have her come day or night if he needs pain relief. He will be in hospital for a few days to try to build him up a bit. It has been a little rest for me, I have slept lots and feel a bit better. I am going up tonight to see him, hopefully he will be a bit brighter. Love Lorna xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Lorna, Sorry you`ve had further upset with your dad - I hope when you go tonight you will find him a bit better. It`s a constant stress, hospital visiting, and then the after-care. My dad lives very near, but even so my heart lurches if the phone goes late at night. Thinking of you, Kathleen C x
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010 Posts: 576
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Just wanted to say "thinking of you" Lorna. So sorry your Dad was in pain. It must have been awful not being able to be there but I'm very glad you managed a couple of hours relaxing at home. 40 miles is a long round trip to be making so frequently. I'm glad you have the Macmillan nurses care too.
Hope you can manage to get some rest Lorna - you are doing brilliantly with all the stress xx Ailsa
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Dear Friends,
Things are getting harder by the day now, my dad is very weak and is still in hospital. He hopes to be home next week with a care package to help him. I will still be there to help but there will be lots of help too. It is so very difficult to comprehend as time is now running out, I didn't see things coming so soon but there is so much I want to do and he is no longer able. I want to make things as easy as possible for him, and make his time left as fulfilled as possible.
Thing is I don't know where to start, I have cried so much the last few days. I feel strong for a while and then I crumble. No one can prepare you for losing a parent, it's the hardest thing in the world to watch someone close to you dying. I do not want dad to suffer, he is on 24hr pain relief now and is hurting so bad at what is happening. He has so much to say and not the words to say them. What must be going on in his head is mind blowing.
It frightens me a bit too if he is really able to be home, as in the hospital he has constant care. He told me tonight he would not see my daughter get married next year, I told him I know but he would still be part of things. We have showed him the photos of the girls in the dresses and my daughter in her bridal gown. I came out of his side room and cried all the way home. Why is life so difficult at times?
Thank you for being there for me.
Love Lorna xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Oh Lorna  Would you feel easier if your Dad was in a hospice? YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 2/14/2011 Posts: 301 Location: South Hampshire
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Hi Lorna
So sorry to hear about your dad. It is very hard isn't it. When my mum came out of hospital I made sure her care package was set up so that I wasn't needed. I did this to make sure that everyone else was doing what was needed and when I was there I was an 'extra' so I could spend time talking with her and doing the odd few things that she wanted done, that weren't essential. This did take a lot of the stress out of the situation for me and my family. I still went over a great deal; but knew that she would be physically looked after and fed and watered without needing me. It just gave me some quality time with her.
We had macmillain nurses too and they were brilliant, she had meals provided when she felt like eating and I put some microwave ready meals in the freezer, so I could cook me something quickly as well if I was there. THe OT's arranged a hospital bed too which was lovely and comfortable too.
She used MST (long acting morphine) and my dad in the past had morphine injections which helped.
You could just read to him if conversation is difficult. I must admit I shed a lot of tears - that is normal and will help you.
I remember my dad asking: 'is there an aeroplane to heaven' - that was so hard to hear, but I could understand why. We had such mixed emotions.
Thinking and praying for you lots Anne xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello LornA
So sorry to hear about how poorly your Dad is. As I have said before it is extremely difficult to keep things together. Yes I agree also that you also expect your Parents to be always there . My Father died when I was 10 but my Mother died 9 yrs ago. I was so close to her.
I totally understand.
With love
Rose
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